Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy is a devastating muscle wasting condition young children face a life confined to a wheelchair from as young as 8 years old and in their teenage years as their muscles weaken they become unable to move independently which has a vast impact on their livelihood and social environment.

There is currently no cure and on average 2 boys are born every week with Duchenne diagnosed in early childhood.  Duchenne Muscular Dystrophy is also life threatening where age expectancy is usually between late teens early twenties.  Around 100 young lives are lost to Duchenne every year.

Action Duchenne

Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne Muscular Dystrophy. 

Join today and create a support page, let’s make a difference to young people’s lives living with the devastating illness Duchenne Muscular Dystrophy.

For more information visit www.actionduchenne.org

For the first time the dream of a treatment of Duchenne is a realistic possibility however progress is hampered by the lack of funding needed to take this research forward for young people living with this devastating disease.

Please help ensure this generation of boys and young men do not lose their lives to this terrible disease by supporting the charity Action Duchenne.

The DMD Registry

The DMD Registry has been set up as a tool for research groups to find patients with clinical criteria for new Duchenne clinical trials.  In 2008 the MDEX team have used the Registry to make contact with patients for the UK Exon skipping trial.

For more information visit http://www.dmdregistry.org