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Action Duchenne - Time to stop wasting! A charity which consists of families who know or have somebody living with Becker or Duchenne muscular Dystrophy… a focused and determined team with some of the hardest working staff in the world – an organisation small but has a massive heart that can't be underestimated! Action Duchenne's main objective is to cure this illness and they have funded various research projects on an international level. For more information visit www.actionduchenne.org
Your support means the world... if you would like to leave your mark in history maybe you would like to send a donation! Time is ticking so we need to get clicking! Donate today
Duchenne Muscular Dystrophy Duchenne is a fatal muscle wasting condition, affecting mainly boys, for which there is currently no cure. On average 2 boys are born every week with Duchenne, diagnosed in early childhood these young children face a life confined to a wheelchair from as young as 8, in their teenage years as their muscles weaken they lose the ability to do everyday tasks such as feed themselves. Their hearts and lungs weaken and as a result they face a short life of between 18-25 years. Around 100 young lives are lost to Duchenne every year For the first time the dream of a treatment of Duchenne is a realistic possibility however progress is hampered by the lack of funding needed to take this research forward to a body-wide treatment for young people living with this devastating disease. Please help ensure this generation of boys and young men do not lose their lives to this terrible disease by supporting our charity. The DMD Registry http://www.dmdregistry.org/ The DMD Registry has been set up as a tool for research groups to find patients with specific gene variations and other clinical criteria for new Duchenne clinical trials. In 2008 the MDEX team have used the Registry to make contact with patients for the UK Exon skipping trial. Join the Registry today so when a treatment comes available you will be the first to know! To see more on Carl's story please visit his stop wasting page! Join us today and create a support page, let’s make a difference to young people’s lives living with the devastating illness Duchenne Muscular Dystrophy! |
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