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Welcome to

The Official web site for Carl ‘Action’ Tilson!

Duchenne Muscular Dystrophy Sufferer, Public speaker and 09/10 Mancunian of the year!


About 2,400 people in the UK have Duchenne muscular dystrophy

Duchenne caused by a mutation in the gene that encodes for dystrophin

Young men with Duchenne usually live into their late twenties some much younger

Life expectancy is improving as standards of care and knowledge about Duchenne increases