Layout Image

Welcome to

The Official web site for Carl ‘Action’ Tilson!

Duchenne Muscular Dystrophy Sufferer, Public speaker and 09/10 Mancunian of the year!


I lost the ability to walk at 7 years old, diagnosed with Duchenne Muscular Dystrophy a devastating muscle wasting condition since then I’ve been confined to a wheelchair and my muscles continue to waste away.

Despite my troubles I continue to be active in using my experiences to help others and to continue to raise awareness of this awful disease so someday soon a treatment will be available for all.

“I hope a cure will come if not for me, I hope it comes for those after me.”